less than
kids are living with rcdp

of you can make a difference

Fighting for an RCDP cure,
…because these children can’t wait.

With your donation, you can change the tomorrow of a child with RCDP.
Giving is as simple as one dollar, one day, one moment

Donate today

We’d love for you to meet our kids.

Meet them here!

Will You Help?

We are grateful for our supporters, who through their donations make it possible to continue our mission of finding a cure for RCDP. Donations support RCDP research programs, and a yearly conference where families learn about RCDP and discover ways to improve the quality of life for their child. Without our supporters, these things would not be possible.

Watch an amazing video and story by The New York Times!

Hope For Rhizo Kids

Have more questions?

There are great families waiting to help you find the answers.

You are not alone!

Ask Them Here!

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A Parent Friendly Description.

A Parent Friendly Description.

Written by Mary Ellis, mom to Ian Ellis and founder of Rhizokids International.

This is an explanation of RCDP that your doctor will understand.

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A Doctor Friendly Description

A Doctor Friendly Description.

Written by Dr. Nancy Braverman -McGill University.

This is an explanation of RCDP that your doctor will understand.

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Have more Questions?


RhizoKids International is sponsoring a registry of individuals with Rhizomelic Chondrodysplasia Punctata (RCDP). The purpose of this registry is to learn more about RCDP and how to predict and treat medical issues that arise as a result.

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Meet our Ohio Chapter.

RhizoKids Ohio chapter was founded in 2008 by Mindy Lee and Jeff Cirner the proud parents of Jake and Jordyn Cirner who both are affected with RCDP Type 2.

Find out more!