On August 11, 2013 Hannah and Sully Peters received the exciting news that they were having their first baby!
By the 13th week of Hannah’s pregnancy the baby was diagnosed inutero with a form of skeletal dysplasia. They were told by three different specialists that what he had was Achondroplasia so they began to prepare themselves for that diagnosis and studied everything about it there was to know.
At 14 weeks, Hannah suffered a fall and was rushed to the emergency room. She was told that she had leaked some amniotic fluid but not enough to cause any harm.
Two weeks after her fall, she and her sister were rear-ended by a driver not paying attention which shook up Hannah and the baby.
Hannah’s baby shower was on February 22, 2014 and the theme for the shower was “Brave Little Warrior.” During the baby’s shower Hannah’s water broke and she started losing a significant amount of blood. She was then rushed to the hospital again by ambulance. There she was told that she was losing a vast amount of amniotic fluid and that she had suffered a partial placental abruption. They prepared her for an emergency c-section with little hope that the baby would survive. At that moment her concerned sister Amber Rhodes stared a Facebook page (Praying for Jude Sullivan Peters) to inform friends and family and have them pray for Hannah and Baby Jude. After much prayer and many hours, days and nights of Hannah being a high risk patient in CMC’s antepartum high risk unit, Hannah miraculously continued to carry the baby.
Soon after, Hannah and Sully saw another specialist who told them that she thought Jude might have something much more severe than Achondroplasia; a form of skeletal dysplasia that would not be compatible with life outside the womb. Many people started to pray around the world for Jude’s precious life.
The Lord intervened and Hannah carried Jude full term. Jude wasn’t born until 40 weeks of gestation! They had little hope that Hannah would even be able to hold Jude or that he would breathe on his own but he continued to defy the odds!
When Jude was just 2 days old, he went for some testing at the hospital and Hannah and Sully were told by doctors that they believed the form of skeletal dysplasia he had was the lethal form of RCDP (Rhizomelic Chondrodysplasia Punctata). They said that with this condition there is often heart defects, neurological damage, and kidney problems. However, Jude’s heart, neurological and kidney scans came back great!
Jude does have chronic pain due to a cartilage deficiency, his hips and shoulders are out of place and he did have congenital cataracts.
Thursday evening, May 1, 2014, Jude suffered two seizures and periods of unresponsiveness. He was rushed to the ER at Levine Children’s Hospital where he was hospitalized for almost two weeks. There they found he was aspirating and was unable to eat by mouth. He is currently on a feeding tube and awaiting more testing.
Jude, his parents and grandparents then traveled to AI DuPont Medical Center in Wilmington, Delaware for further tests and treatment. There it was confirmed by specialists in the field of Skeletal Dysplasia that Jude did indeed have RCDP.
There Jude had an MRI that showed he also has a spinal cord tether, spinal stenosis and an unstable neck.
Jude has started the process of physical therapy, occupational therapy and speech therapy and has had both cataracts removed at Duke Medical Center. Jude has a wonderful team of specialist working with him and has many procedures and surgeries in his future without a miracle.
Jude is a very cheerful, happy smiling baby with a strong warriors spirit, he has an amazing quality about him that draws people to him; to meet Jude is to love him. He lives with his parents, grandparents and loyal BFF Lucy; his german Shepherd in Charlotte NC. He has a large loving family of aunts, uncles and cousins and a large community and church family that love him very much. Hannah and Sully along with family, an array of friends and a vast community online have dedicated many hours of prayer believing for healing for this precious baby.
Please stand with us in prayer for Jude, Our Brave Little Warrior and believe with us for complete healing as this precious little guy fights for his life. Please join us in praying for all the precious Rhizo kids that fight so valiantly against this horrific disease