Ohio Chapter – RhizoKids International

RhizoKids Ohio was founded in 2008 by Mindy Lee proud parent of Jake and Jordyn, both affected by RCDP Type 2. We are a 501(c)(3) organization, dedicated to raising awareness of Rhizomelic Chondrodysplasia Punctata (RCDP) and funding research to find treatments and, ultimately, a cure.
Since its inception, RhizoKids Ohio has hosted annual fundraisers, raising more than $100,000 over the years. These funds are critical for research efforts aimed at combating this terminal illness.
Upcoming Events for RhizoKids Ohio –
Join us on October 4, 2025, for Roarin’ for Rhizo Kids 2025, a powerful fundraising event bringing together families, supporters, and advocates in the fight against RCDP. Your participation helps us increase awareness, advance research, and improve treatments for these extraordinary children.
  • RhizoKids Ohio is a 501(c)(3) organization, and all donations are tax-deductible.
For more information, visit our website:   
            www.rhizokidsohio.com